SYNGAP1 Foundation Press Releases February 2017 The heartache that lives alongside our son’s very rare disease March 2017 SYNGAP1: From Rare Disorder to Common Cause July 2017 Rare Disease Foundation CEO cites collaboration, data sharing as keys to progress November 2017 Cypress mom launches research foundation seeking treatment for son's rare condition. December 2017 Family promotes awareness of daughter's rare syndrome March 2018 Rare Disease Report Strategic Alliance Partner Publishes Syngap1 Paper April 2018 Your Child Has What? Navigating the Challenges of Rare Diagnoses (laparent.com) January 2018 Rare Leader: Monica Weldon, CEO of Bridge the Gap May 2018 Pod Cast ~ Monica Weldon - Bridge the Gap-SYNGAP - HighDrive Network August 2018 FROM BENCH TO BEDSIDE AND BACK September 2018 First Research Grant to Texas Children's Hospital October 2018 SYNGAP1 Center of Excellence at Texas Children’s Hospital receives research grant November 2018 Scripps Research Institute researches genetic link for some children's autism symptoms November 2018 Families aid discovery of a sensory-processing disorder gene in children with autism traits November 2018 Mom, scientist work together on scientific breakthrough January 2019 Bridge the Gap - SYNGAP: Families aid discovery of a sensory-processing disorder in a broken gene in children with autism traits January 2019 First Research Grant to Kennedy Krieger Institute January 2019 A concerned Texas mom finally has answers about the cause of her son’s sensory-processing problems, thanks to a special collaboration between her patient-advocacy group and the lab of Scripps Research Neuroscientist Gavin Rumbaugh, Ph.D. February 2019 Rare Disease Day: Little Charlotte's fight against an ultra-rare disease | Stories (elmundo.es) March 2019 SYNGAP Research and the Role of Advocacy April 2019 Bridge the Gap – SYNGAP Education and Research Foundation Opens Third Center of Excellence at Stanford Children’s Health April 2019 As calls mount to ban embryo editing with CRISPR, families hit by inherited diseases say, not so fast April 2019 How families are driving the study of autism genes May 2019 Power Of Rare Disease Patient Registries Touted By US FDA, Patients May 2019 Spotlight On Monica Weldon – A Rare Disease Advocate October 2019 Patient Driven: Neuroscientists Solve the Puzzle of the Gene-Protein Duo Behind SYNGAP1 August 2019 The Patrick Wild Centre was excited to host the first UK SYNGAP1 Family Meet-Up July 2019 Family groups, researchers join forces to solve mysteries of autism gene November 2019 Bridge the Gap - SYNGAP Education and Research Foundation Hosts the First SYNGAP1 FDA Patient-Focused Drug Development Meeting April 2020 Pod Cast - When your son has the sixth SYNGAP1 diagnosis in the world: Monica Weldon from Bridge the Gap July 2020 Broadway and Hollywood Come Together for SYNGAP1 Research August 2020 Being a True Pioneer for Rare Disease: Monica Dudley-Weldon's story November 2020 Get to Know Bridge the Gap - SYNGAP Education and Research Foundation November 2020 Rare Voices S1E6: Monica Weldon, Bridge The Gap: SYNGAP Education And Research Foundation May 2021 DelBene, Kelly, Bera, Bucshon Introduce Bipartisan Legislation to Make Care More Efficient for Seniors by Reforming Prior Authorization June 2022 Industry Era Magazine Woman Leader: Monica Dudley-Weldon "10 Most Influential Women Leaders of 2022"
