Board of Directors

Charles Bergamo, J.D., ChSNC, ChFC, CLU Board Chair

Monica Dudley-Weldon, BS, MSL President/CEO/Founder

Katelyn Kennedy

Secretary

Lihi

Lihi Leibovich

Treasurer/Accountant

Ellen Morgan, MS Member At Large

Ellen Morgan, MS

Founder/President

Member At Large

John Groth

John Groth, MSL

Director at SKAN

Member At Large

Advisory Board

Melanie Battye

Melanie Battye

SYNGAP1 Foundation UK

President

Chris Jones

Chris Jones, MA, PhD

Partner, Red Nucleus, iTakeControl Platform

Katie V

Katie Vetro

Senior Director, Clinical at Red Nucleus

pam

Pam Cusick

Senior Vice President at Rare Patient Voice

Michael Chez, MD

Michael Chez, MD

Research Pediatric Neurologist

Sutter Institute for Medical Research

OIP

SOON TO BE ANNOUNCED

Scientific Advisory Board

Nathan Foreman, PT

Nathan Foreman, PT

Principal & Co-Founder RehabMetrics

Advisory Board Chair

Jacques Michaud, MD, PhD
karun_singh

Karun K. Singh, Ph.D.

Senior Scientist, Krembil Research Institute

Associate Professor, University Health Network (UHN)

Mary Kennedy, PhD

Mary Kennedy, Ph.D.

The Allen and Lenabelle Davis Professor of Biology

Caltech University

Ben Hall, PhD

Ben Hall, Ph.D.

Director Circuit Biology Department

Lundbeck Pharmecuticals

 

smith-hicks (2)

Constance Hicks-Smith, Ph.D., MD

Medical Director for the Center for Autism & Related Disorders

Kennedy Krieger Institute

dallman-julia

Julia Dallman, Ph.D.

Associate Professor

University of Miami

Andrew-Stanfield

Andrew Stanfield, PhD

Senior Clinical Research Fellow

Edinburgh University Patrick Wild Centre

OIP

Maria McCormack

Research Coordinator II

Molecular and Human Genetics - Zoghbi Lab
Baylor College of Medicine

Co-Investigator SYNGAP (MRD5) Natural History Study and Registry