Board of Directors

Monica Dudley-Weldon, BS, MScL President/Founder

Katelyn Kennedy


Stephanie Lee, BA, MS


Business Operations Manager

Rosalyn, Inc.

Neil Morris

Senior Director, CIO, Lead IT

Maxar Technologies

Member At Large

Elizabeth Sachnoff, MBA, PMP, LSSGB, DTM

Clinical Project Director


Member At Large

Matt Toresco

Editor in Chief/Chief Commercial Officer

The Advocate/The Brooks Group

Member At Large

Advisory Board

Melanie Battye

Melanie Battye

SYNGAP1 Family Member

President, SYNGAP1 Foundation UK


BAE Systems

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Karen Altobello, BA

SYNGAP1 Family Member

SYNGAP1 Foundation

Family Advisory Chairwoman

Private Fundraiser


Jamie Roberston

SYNGAP1 Family Member

Assoc. Dir. Head Global Serialization

Eisai, Inc.


Pam Cusick

Vice President

Rare Patient Voice

Michael Chez, MD

Michael Chez, MD

Research Pediatric Neurologist

Sutter Health Institute


Rodrigo Gomez, BSc, MSc

Regional Director

Veluvine B.V. (Netherlands)

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Rich Elles, PPM

Strategic Advisor


John Groth, MSL

Vice President/Strategic Sr. Leader

Optima Machinery Corporation

Member At Large

Scientific Advisory Board

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Nathan Foreman, PT

Principal & Co-Founder RehabMetrics

Advisory Board Chair

Jacques Michaud, MD, PhD

Karun K. Singh, Ph.D.

Senior Scientist

Krembil Research Institute

Associate Professor

University Health Network (UHN)

Mary Kennedy, PhD

Mary Kennedy, Ph.D.

The Allen and Lenabelle

Davis Professor of Biology

Caltech University

Ben Hall, PhD

 Ben Hall, Ph.D.

Director Circuit Biology Dept.

Lundbeck Pharmacuticals

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Constance Hicks-Smith, Ph.D., MD

Medical Director for the

Center for Autism & Related Disorders

Kennedy Krieger Institute


Julia Dallman, Ph.D.

Associate Professor

Department of Biology

University of Miami


Andrew Stanfield, PhD

Senior Clinical Research Fellow

Edinburgh University

Patrick Wild Centre


Maria McCormack

Research Coordinator II

Molecular & Human Genetics

Baylor College of Medicine


SYNGAP1 Natural History Study & Registry

Honorary Board Members


Nicole Merrium, BS, MBA

SYNGAP1 Family Member

Founding Board Member 2014 - 2019

Board Chairwoman 2017 - 2019

Jojo Debord

Jojo DeBord, M.Ed.

SYNGAP1 Family Member

Board Member 2018 - 2020

Family Advisory Committee

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Candace Lerman, Esq.

Board Member 2016 - 2019

Government Affairs


Chuck Bergamo, JD., ChSNC

SYNGAP1 Family Member

Board Chair 2019 - 2023

We also would like to thank the contribution of an honorary member appointed by the Board of Trustees requesting privacy and remain off the website.