SYNGAP1 Family Conferences and Clinical Meet-Ups

Our SYNGAP1 Family Conferences and Clinical Meet-Ups are structured to maximize opportunities for SYNGAP1 patients and families to connect with other families and SYNGAP1 clinical and research experts. The forum provides a forum where SYNGAP1 patients, families, and caregivers can connect and gain knowledge about SYNGAP1-related healthcare, education, research, and community resources, that will help them navigate their journey.

We aim to ensure all SYNGAP1 community members feel valued, empowered, and connected. This a unique opportunity to share information about the importance of patient advocacy and how patient and family participation in ongoing research is already accelerating the pathway to better treatments.

Past Family Meet-Ups

First SYNGAP1 Family Meet-Up ~ November 2017

SYNGAP Center of Excellence
Kennedy Krieger Institute

John Hopkins School of Medicine
Baltimore, Maryland, USA

Second SYNGAP1 Family Meet-Up ~  April 2018

CHU Sainte-Justine Research Center

Universite de Montreal
Montreal, Quebec, Canada

In Partnership with

Overcome SYNGAP1

Third SYNGAP1 Family Meet-Up ~ June 2019

The Patrick Wild Centre

SYNGAP1 Clinic

 

University of Edinburgh

Edinburgh, Scotland, United Kingdom

In Partnership with

The SYNGAP1 Foundation UK

 

Fourth SYNGAP1 Family Meet-Up ~ August 2019

SYNGAP Center of Excellence

Texas Children's Hospital

Baylor College of Medicine

Houston, Texas, USA

Fifth SYNGAP1 Family Meet-Up ~ November 2019

SYNGAP Center of Excellence
Kennedy Krieger Institute

John Hopkins School of Medicine
Baltimore, Maryland, USA

Sixth SYNGAP1 Family Meet-Up ~ February 2022

The Patrick Wild Centre

SYNGAP1 Clinic

 

University of Edinburgh

Edinburgh, Scotland, United Kingdom

In Partnership with

The SYNGAP1 Foundation UK