SYNGAP1 Family Conferences and Clinical Meet-Ups
Our SYNGAP1 Family Conferences and Clinical Meet-Ups are structured to maximize opportunities for SYNGAP1 patients and families to connect with other families and SYNGAP1 clinical and research experts. The forum provides a forum where SYNGAP1 patients, families, and caregivers can connect and gain knowledge about SYNGAP1-related healthcare, education, research, and community resources, that will help them navigate their journey.
We aim to ensure all SYNGAP1 community members feel valued, empowered, and connected. This a unique opportunity to share information about the importance of patient advocacy and how patient and family participation in ongoing research is already accelerating the pathway to better treatments.
Past Family Meet-Ups
First SYNGAP1 Family Meet-Up ~ November 2017
SYNGAP Center of Excellence
Kennedy Krieger Institute
John Hopkins School of Medicine
Baltimore, Maryland, USA
Second SYNGAP1 Family Meet-Up ~ April 2018
CHU Sainte-Justine Research Center
Universite de Montreal
Montreal, Quebec, Canada
In Partnership with
Overcome SYNGAP1
Third SYNGAP1 Family Meet-Up ~ June 2019
The Patrick Wild Centre
SYNGAP1 Clinic
University of Edinburgh
Edinburgh, Scotland, United Kingdom
In Partnership with
The SYNGAP1 Foundation UK
Fourth SYNGAP1 Family Meet-Up ~ August 2019
Fifth SYNGAP1 Family Meet-Up ~ November 2019
SYNGAP Center of Excellence
Kennedy Krieger Institute
John Hopkins School of Medicine
Baltimore, Maryland, USA
Sixth SYNGAP1 Family Meet-Up ~ February 2022
The Patrick Wild Centre
SYNGAP1 Clinic
University of Edinburgh
Edinburgh, Scotland, United Kingdom
In Partnership with
The SYNGAP1 Foundation UK